This last week you spent recovering from the week before. You were sick, again. Really sick.
You started with a little cough and having a hard time breathing on June 27th. I took you for what suppose to be a normal asthma recheck visit with your pediatrician and it ended up being an all day affair of testings and such. You really hate those visits, and so do I. You were put on around the clock breathing treatments from your nebulizer and we were to observe your cough over the next week.
That next week your cough begin to worsen and your breathing wasn't getting any better. So back to the pediatrician we went. You were then put on 2 steroids and an antibiotic along with the around the clock nebulizer treatments and your normal allergy/asthma medications. It makes my heart sad how much medication you have been on and how well you take it. You are use to this routine since we have been doing it now since you were about 6 months old. It really breaks my heart.
While you were on the steroids, your cough improved and you were not having near the trouble breathing that had been. We finished the 5 day steroids thinking you were going to be well. Two days later you were back to coughing to the point of vomiting, running fever, wheezing, and being completely lethargic. So on Saturday, July 14th we took another trip to the ER. They did a few nasal swabs and then sent us home. The tests they did at that time came back negative and they stated that we were doing all that we could.
Apparently not because Monday morning we were back in the pediatricians office and then sent to a pediatric pulmonologist for more testing. We spent 5 hours in the pulmonary office and did several rounds of testing, and took several viles of blood to send off for more testing. After 5 hours we were sent home with 15 prescriptions (which I was not happy about) and told to come back in a week. We will NEVER go back to that doctor, and I am sorry that I even took you there and made you go through all that for nothing in the first place.
Tuesday we stayed home because you were not any better and we were told that you couldn't go to school until you were 100%, yet they couldn't give us an explanation of why you were so sick.
Wednesday you had an appointment with your allergist and as soon as we got to the office you began coughing until the point of vomiting for 20 straight minutes and you couldn't even catch your breath. So, he sent us straight back to the ER where you were then admitted into Children's for the next 3 days.
Over the course of the next three days you had several tests ran, more blood drawn, an upper GI, several x-rays, testing for cystic fibrosis...the list goes on. You were in isolation for a week until they could figure out what was wrong. You were exhausted, and so was I. I am still exhausted, and so are you.
You tested positive for parainfluenza virus and the pertussis virus. Both were making it nearly impossible for you to breath and both were causing your coughing/vomiting. You were drained. Literally.
You also tested hypersensitive to type 1 allergies which are fatal when triggered in certain ways. This makes me want to put you in a gerbil ball and roll you around every where. I think people might frown upon that.
You also have severe allergy induced asthma. And your lungs are in bad shape. Your left one seems to shut down when you get respiratory infections and only partially expand the way that it should and your right lung has 10% collapsed bronchial tubes. I am a nervous wreck all the time because of this. I worry about your breathing patterns when you sleep and when you are playing hard. I am scared that your little fragile lungs will get tired and stop working. I know, silly mom.
We are having to make several changes to your environments and your diet. You have also tested allergic to dust, mold, wheat, milk, and egg whites. We thank God for Ms Carmen who comes to clean our house and rid it of any dust/mold on a weekly basis. This new diet is a challenge for all of us. We aren't really sure what you can eat, there is wheat, milk, and eggs in everything. So we are working very hard on this one for you.
For the next few years you will be under the care of several different specialist, on daily medications, and a very strict diet. You will undergo very rigorous testing for the next few years until we figure out what the underlying problem really is.
You will be fine, I know you will. You will be able to play like normal kids without fear of your breathing. You will be able to be whatever you want to be, mommy will make sure of that.
I love you sweet boy!
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